When her three-month-old daughter Sophie is diagnosed with a rare seizure disorder, Elizabeth Aquino and her husband, Michael, are thrust into a nightmarish world of impossible decisions, toxic drug cocktails, and talk of brain surgery on their tiny child. As they grapple with the harrowing progression of their child's seizures, they grow to understand that the doctors know little more about how to heal Sophie than they do. They are in a terrifying no-man's-land. This narrative of unintended medical trauma and the search for healing through alternative means will sear you with its stubborn hope, unexpected grace, and abiding love.
Elizabeth Aquino lives in Los Angeles with her family. Always a writer but trained as a pastry chef, her life took an entirely unexpected turn when her first child was diagnosed with a devastating seizure disorder; her daughter became her greatest inspiration as they navigated the systems of care for the disabled and sick. Elizabeth's work has been published in numerous literary magazines, newspapers, and anthologies, including the A Cup of Comfort series, qarrtsiluni, Kicking in the Wall, My Baby Rides the Short Bus, The Mom Egg, Spirituality and Health magazine, and the Los Angeles Times. When she isn't writing she spends her time as an advocate for children with special health-care needs, operates a home-based cake and pastry business, and acts as chauffeur to and devoted admirer of her two teenage boys. She also posts daily on her blog, "a moon, worn as if it had been a shell" (http://www.elizabethaquino.blogspot.com).
This is a short e-book published by Shebooks—high quality fiction, memoir, and journalism for women, by women. For more information, visit http://shebooks.net.
